"My Giant Face Tumor" Makes Neurofibromatosis Personal

10/09/2012

In My Giant Face Tumor, TLC follows the stories of Ed and Aum, two people who live 8,000 miles apart but share a rare condition.

Neurofibromatosis causes tumors to grow uncontrollably along nerve shafts. Ed and Aum both have giant tumors taking over their faces. The tumors are so big, they're causing them to lose their eyesight, and they're eroding their skulls (see photo at right). What's more, functioning in society with their giant tumors is nearly impossible for Ed and Aum.

Dr. McKay McKinnon thinks their cases are treatable, even after Ed and Aum have been turned away by other doctors. The renowned cranio-facial surgeon prepares to operate on Ed and Aum as they struggle with other uncontrollable factors: medical insurance, weather and emotional upheaval.

Hear their harrowing stories as they seek life-changing surgeries. My Giant Face Tumor premieres Wednesday, Oct. 17 @ 9|8c.

Comments

[Grosir Produk kecantikan]

Thank you for another essential article. I have a presentation incoming week, and I am on the lookout for such information. Where else could anyone get that kind of information in such a complete way of writing?

[TREY MATLOCK]

I'm a 20 year old young man due to the fact I have NF1 and healthy the military has diquafiled me to all arm forces. Because they considered all NF's a very high medical risk.

[Kandy Braley]

I just wanted to thank you for doing a story on NF. Both my youngest son (he will be 2 this December) and I have it. I have brain tumors due to this disorder.

[Landi]

My daughter has NF1. I am SO excited that NF is getting some exposure. Ed & Aum, God has special plans for your life! This will help someone who isn't dealing well with things..hope will be given, faith restored. god bless you both and continue being an advocate as someone who hasn't given up!!

[Michelle]

Ed, I watched the tv show tonight & my prayers are with you. I wish you all the success on your 4th surgery which is next month. May god bless you. It takes a lot of strength to go through what you have & your an inspiration to us all. xoxoxo

[Jill S.]

I remember Ed from the VoEd school we both attended. Ed was always smiling...such an inspiration. I am so happy for you, Ed. You look terrific! God bless and best wishes.

[Michael Dorworth]

OK I am as of right now watching this program on TLC..I hardly ever watch TLC, Im a 39yo male that works construction and have most of the time deemed TLC a chick ch, i admit i was wrong.. WOW how to start this post using only my blind opinions! FIRST to Aum you ARE no matter what others think and say you are a beautiful young women and I say that and believe that just from watching only half of the show your previewed on.. Some people are mean and I'm sure you don't need me telling you that.. School children can be mean just as much as adults are.. Please never give up kid its your life and you should always live as if everyday is your last. My dad use to tell me when life was going in the direction i didnt want it to go, he said, Its a good live if you don't weaken.. I always took that as if dont give in to your disease, disabilities and/or ignorance of others you will alway be strong to handle everything.. Remember things happen for a reason, and ALWAYS remember you are a beautiful your a lady.. Good luck

[Ed Port]

If the TV program does not give my full name it is Ed Port of Austintown Ohio. My life is an open book as it is justwant the world knows my full name during the program. My website is www.edneedsamiracle.com and my 4th operation is coming up on Nov 29th 2012

[Panerai Replica Watches UK]

If so, you may want to start looking in a different arena of life--the arena of “being,” because that’s one of the components of someone’s life purpose. Let’s go back to our analogy of the cup and the water.

[Virginia Carr]

As a parent of a family member with NF, my heart goes out to you. A cure needs to be found soon. I hope the doctors can help you. I will be sure to watch. God Bless.

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We manage find impact our masterpiece Cartier La Dona illustration Watches that close with the rainbow of Louis-Francois Cartier, the originality unpunctual "The accommodation of Cartier."

[Ed Port]

Thank you to everyone who helped put this stroy together and for TLC willing to share it with the world. May it help many people who need there sprit uplifted. That there is always hope.